GET INVOLVED - RESEARCH CORNER
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Research Engagement Opportunities
We want you to know of some exciting developments in lupus research from our area. The Division of Rheumatology at Emory University is recognized internationally for research in lupus epidemiology and outcomes. The GOAL Study is one of the centerpieces of the program, focusing on what happens in the "real world" in people who live with lupus. We look forward to continuing to share with you our findings and hearing back as to what is most important to you. After all, GOAL could not exist without your commitment and invaluable information. We also recognize that lupus must be conquered on several fronts, which is why we are so excited to share additional opportunities for those who are looking to be even more involved. |
SOUL - Skin Outcomes Uncovered in Lupus Study
SOUL is a large project led by the Division of Rheumatology at Emory University to better understand the quality of life and other important outcomes in people with some types of skin lupus. SOUL is part of Georgians Organized Against Lupus (GOAL), a project led by the Division of Rheumatology at Emory University.
We will collect vital information to better understand important outcomes among people with skin lupus like you. SOUL will address how skin lupus may impact physical, emotional and social aspects of your health. By learning from patients with skin lupus, we can help to bridge the gaps that still remain in our understanding of these forms of lupus.
SOUL is a large project led by the Division of Rheumatology at Emory University to better understand the quality of life and other important outcomes in people with some types of skin lupus. SOUL is part of Georgians Organized Against Lupus (GOAL), a project led by the Division of Rheumatology at Emory University.
We will collect vital information to better understand important outcomes among people with skin lupus like you. SOUL will address how skin lupus may impact physical, emotional and social aspects of your health. By learning from patients with skin lupus, we can help to bridge the gaps that still remain in our understanding of these forms of lupus.
Be WELL - Black Women's Experiences Living with Lupus
We would strongly value your participation in the Be WELL Study. It is important that African American women who are living with lupus participate to fully represent the community. This will help us better understand the impact of lupus on the lives of African American women. The information we gather will help us develop new resources and improve the lives of all people living with lupus.
We would strongly value your participation in the Be WELL Study. It is important that African American women who are living with lupus participate to fully represent the community. This will help us better understand the impact of lupus on the lives of African American women. The information we gather will help us develop new resources and improve the lives of all people living with lupus.
- No cost to participate.
- Completely confidential.
- Little risk involved.
- Compensation for time and effort.
You may also contact info@lupusingeorgia.org or call at (404) 778-3167. To get more information, visit us at www.bewellstudy.com.
PULSE Study
People Understanding Lupus Through Shared Experiences (PULSE) is a GOAL sub-study focusing on cardiovascular (heart) disease and lupus. We want to understand how past and present life experiences, quality of life, behaviors, and biological factors are related to your lupus and how all of this could affect your cardiovascular health. We do this through survey questions and biospecimen (blood, urine, or saliva) collection. We hope to use this information to lower the risk of cardiovascular disease among those living with lupus. To participate in PULSE you must be a member of the GOAL study.
People Understanding Lupus Through Shared Experiences (PULSE) is a GOAL sub-study focusing on cardiovascular (heart) disease and lupus. We want to understand how past and present life experiences, quality of life, behaviors, and biological factors are related to your lupus and how all of this could affect your cardiovascular health. We do this through survey questions and biospecimen (blood, urine, or saliva) collection. We hope to use this information to lower the risk of cardiovascular disease among those living with lupus. To participate in PULSE you must be a member of the GOAL study.
You may also contact info@lupusingeorgia.org or call (404) 251-8832.
Lupus Nephritis
We know that may with lupus will have kidney involvement. Through current therapies, including cyclophospamide (Cytoxan) and mycophenolate mofetil (Cellcept), are effective and have given renewed hope to many, there is still a clear need for even more effective and safer therapies for lupus nephritis. If you have a kidney biopsy in the past year and your doctor is considering or you are already on mycophenolate mofetil (Cellcept), you may qualify for an important clinical trial.
We know that may with lupus will have kidney involvement. Through current therapies, including cyclophospamide (Cytoxan) and mycophenolate mofetil (Cellcept), are effective and have given renewed hope to many, there is still a clear need for even more effective and safer therapies for lupus nephritis. If you have a kidney biopsy in the past year and your doctor is considering or you are already on mycophenolate mofetil (Cellcept), you may qualify for an important clinical trial.
Bone Marrow Study
Emory researchers are studying cells in the bone marrow to get a better understanding regarding the development of lupus. The bone marrow is a key component in the body's immune system and is where most of the immune cells develop and learn to do what they do. Studying the bone marrow in those with lupus may give us important information as to why cells react the way they do in lupus.
Emory researchers are studying cells in the bone marrow to get a better understanding regarding the development of lupus. The bone marrow is a key component in the body's immune system and is where most of the immune cells develop and learn to do what they do. Studying the bone marrow in those with lupus may give us important information as to why cells react the way they do in lupus.
You may also contact info@lupusingeorgia.org or call 404-712-3940.